What is the life expectancy of someone with NF2?
Tumours that develop inside the brain and spinal cord can place a strain on the body and shorten life expectancy. The average life expectancy for someone with NF2 is 65 years of age. Read more about treating neurofibromatosis type 2.
What is the difference between neurofibromatosis type 1 and type 2?
In NF2, benign tumors called schwannomas grow on nerves throughout the nervous system and often cause impaired hearing and vision. In NF1, benign tumors called neurofibromas cover the peripheral nerve and, similarly, may cause pain or specific neurologic symptoms.
Is NF2 life threatening?
NF1 causes tumors to form in various tissues and organs of the body. This causes skin problems and bone deformities. NF2, on the other hand, causes tumors to develop on the brain and spinal nerves. Although most tumors caused by NF are not cancerous, they can still be dangerous and impair your quality of life.
Is neurofibromatosis type 2 curable?
While there is currently no cure for NF2, there are clinical trials available at the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center.
How is type 2 neurofibromatosis treated?
There’s currently no cure for NF2. Treatment involves regular monitoring and treating any problems as they occur. Surgery can be used to remove most tumours, although it carries a risk of causing problems, such as complete deafness or facial weakness.
Is NF2 a disability?
If you or your dependent has neurofibromatosis, you may qualify for Social Security disability benefits. While the Social Security Administration (SSA) does not list the condition specifically, the SSA will consider many of the symptoms typically suffered by those who have neurofibromatosis.
What is the life expectancy of someone with NF1?
If there are no complications, the life expectancy of people with NF is almost normal. With the right education, people with NF can live a normal life. Although mental impairment is generally mild, NF1 is a known cause of attention deficit hyperactivity disorder. Learning disabilities are a common problem.
How do I know if I have neurofibromatosis type 2?
Symptoms of neurofibromatosis type 2 hearing loss that gradually gets worse over time. hearing ringing or buzzing in the ears (tinnitus) balance problems – particularly when moving in the dark or walking on uneven ground.
Does NF2 make you tired?
People with NF2 commonly report fatigue or extreme tiredness. This often follows treatment for a brain tumour and can continue even after you have fully recovered from the surgery.
What is the treatment for neurofibromatosis type 2?
Who does neurofibromatosis type 2 affect?
Affected Populations NF2 is a rare disorder that affects males and females in equal numbers. All races and ethnic groups are equally affected by this disorder. The estimated incidence of NF2 is 1 in 33,000 people worldwide. The symptoms of this disease typically become apparent during puberty or early adulthood.