What is the life expectancy of a child with HLHS?
Kaplan-Meier survival estimates for HLHS were 84.4% at age 1 week, 76.2% at 1 month, 63.5% at age 1 year, 58.6% at age 5 years, 54.6% at age 10 years, and 32.6% to age 15 years.
How long do HLHS patients live?
Most infants die within the first two weeks of life, with an average age at death of 4.5 days (31,33,34). Some patients with HLHS, however, can survive beyond sixty days, without any surgical intervention through the development of pulmonary hypertension (8,33).
How many babies are born with HLHS each year?
The Centers for Disease Control and Prevention (CDC) estimates that each year about 1,025 babies in the United States are born with hypoplastic left heart syndrome. In other words, about 1 out of every 3,841 babies born in the United States each year is born with hypoplastic left heart syndrome.
Who is the oldest person with hypoplastic left heart syndrome?
“Thankfully, this isn’t the case for Leigh Ann and hopefully won’t be a consideration until much farther down the road.” The oldest living person with HLHS is their 30s. Ultimately, the Cribbs hope and pray that Leigh Ann has a long life ahead of her.
How severe is HLHS?
If not treated, HLHS is fatal within the first few days or weeks of life. While treatment is difficult, surgical and medical interventions have improved chances of survival. Treatment may include a series of surgeries to restore function to the left side of the heart (staged reconstruction), or heart transplant.
Can you live a normal life with HLHS?
Most babies who receive treatment for HLHS live a healthy life. Children with this condition need lifelong follow-up with a cardiologist.
Can a baby survive hypoplastic left heart syndrome?
Without surgery, hypoplastic left heart syndrome is deadly, usually within the first few days or weeks of life. With treatment, many babies survive, although most will have complications later in life. Some of the complications might include: Tiring easily when participating in sports or other exercise.
What are the 3 surgeries for HLHS?
The series of three reconstructive operations to repair HLHS — the Norwood, Glenn and Fontan procedures — is known as ” Staged Reconstruction .” Frequent surveillance in infancy and early childhood is important to minimize risk factors for the eventual Fontan operation.
How do you fix HLHS?
Hypoplastic left heart syndrome is treated through several surgical procedures or a heart transplant. Your child’s doctor will discuss treatment options with you. If the diagnosis has been made before the baby is born, doctors usually recommend delivery at a hospital with a cardiac surgery center.